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[quote=Anonymous]I'm the "my kid turned out to have celiac" PP. It is not a stool collection, as a different PP commented. Rather, the first step is typically a blood panel to check for antibodies (google "celiac panel"), with an endoscopy as the next step to look at the duodenum and take samples (biopsy) to examine under a microscope for villi damage.

My kid had been seeing a psychologist for help with extreme anxiety (after another psychologist, a family counselor, and a psychiatrist, not to mention developmental pediatrician, regular pediatrician, occupational therapists, and others not coming to mind right now - it was a long journey), and the psych observed that they'd only seen a few kids before with such extreme anxiety and one (or maybe more?) of them had turned out to be celiac, so let's screen for that.

I was surprised bc at the time my kid was tall for age, carrying extra weight, etc., and we'd always thought the stomach aches and headaches were related to the anxiety. Turned out, antibodies were off the charts.

If your doc only checked the TTG-IGA (antigliadin antibodies) and did not also check regular IGA levels (IGA deficiency will affect TTG-IGA levels) or other tests (e.g., EMA, TTG-IGG), then the full panel wasn't done. It's also possible to be seronegative yet celiac (you can find some of these examples on the forums at celiac.com or the reddit.com celiac subreddit).

Finally, it's also possible to be gluten-sensitive without having celiac. There was a flawed study a year or two ago that claimed to disprove the existence of non-celiac gluten-sensitivity, but I don't think it's determinative and anecdotally, it's quite a real phenomenon.

BTW, celiac (or other issues) can drive vitamin and mineral deficiencies that affect behavior as well - vitamin D, ferritin, B12, magnesium ... (Disclaimer: IANAD, but I have done a lot of reading on this topic.)

Good luck![/quote]

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