Reply to Tics and Tourettes

Forum Index » Kids With Special Needs and Disabilities

Reply to "Tics and Tourettes"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]I have 2 with TS and a 3rd that likely will eventually be diagnosed. TS is such a varied syndrome in terms of symptoms and severity so our experience may or may not help. We saw Marc DiFazio at CNMC and loved him. My oldest had a flare of upsetting tics (spitting) in 3rd grade and started on clonidine. Before that her tics were more subtle.  We found it worked quickly to control her tics and she has remained on it for years. She’s had no side effects and is now essentially tic free as a 16 year old. Unfortunately my younger child had a rougher road. His tics became very severe after a trial of Concerta. He was making noises constantly. We were encouraged to stick with the Concerta and add clonidine. It helped a little but it was still miserable and the clonidine made him sleepy in school when the dose was raised. We saw Dr Mansueto and he was great. He encouraged us to wait on behavioral therapy until he was a little older. We then had a neuropsych. The neuropsych suggested stopping  the Concerta (she found no evidence of ADHD) and changing schools to a less stressful environment. We saw a huge reduction in tics and felt like our son was finally able to function again. Stress and stimulants were clearly triggers for him. We also decided to switch to Kapvay which is an extended release form of clonidine and that eliminated the sleepiness. He definitely still has tics but they are very mild and not obvious to most people. If we ever have another bad flare we will go to see Dr Mansueto. [/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics