Reply to Gettnig evaluated for PANDAS/PANS

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[quote=Anonymous]It is a diagnosis of elimination.

Here’s a site listing the general ones people like to do.  http://www.pandasnetwork.org/understanding-pandaspans/immunological-workup/  When our psychiatrist first mentioned pandas, we didn’t get all these (she’s not a pandas expert) but she knew enough to run all the ones listed at that link under strep, and also mycoplasma. DS had sudden onset neuro symptoms, and his strep titers tested extremely high (1350 when reference range was 250). So our psych felt pretty comfortable moving forward with treatment (antibiotics) while we waited to get in with a specialist.  In the absence of the high strep titers, she said she would not have felt comfortable treating, esp because his symptoms were not obvious pandas (ocd and tics) — tho I note there are a lot of people on pandas forums who claim that kids can have low strep titers and pandas.

So I would start by asking your ped to test strep and mycoplasma — because a ped is unlikely to agree to anything more as a fishing expedition. If any of those test high, you should be able to get your ped on board and maybe prescribe antibotics (start with augmentin) because there’s not that much harm.  And then make an appointment with a specialist. [/quote]

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