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[quote=Anonymous][quote=Anonymous][quote=Anonymous]As someone with a disabled child on Medicaid, I’ll be honest, I’m torn. While I’m glad so many people will have health insurance now, it may mean those of us who qualified under the original program which the federal government reimburses less for will be squeezed. Childless adults will be prioritized to some degree since the feds pay so much for them. We are so lucky to be covered but recent years have felt the threat of budget cuts and the potential for lost services. VA will be on the hook for more money no and I’m concerned about my DS who is 12. I may be flamed for this, but I’m just a mom who wants the best for my kid... while other people have access to care too. [/quote]

Interesting. Are you involved with any advocacy groups for children with disabilities? Were any of them expressing these concerns in opposition to the expansion for these reasons?
I would think that over the entire lifetime of your child, as they become older, this expansion will be better than if it had not happened.[/quote]

Yes I am. So the expansion is a catch 22. The newly eligible people (generally those up to 138% of the federal poverty line) are “worth more” to the states since the feds pay approximately 94% of their costs. For a state that’s a great deal. Those those of us where were previously enrolled the feds pay 60-ish%. Therefore a state has to pay way more for us. All that to say it’s better economics for a state to prioritize the new people. Who I’m not arguing are not deserving.

In my interactions with some advocacy groups they support the expansion since they see it as more members. When talking with our therapists or other special needs parents they are all concerned. Opposing Medicaid expansion isn’t popular so everyone feels forced into silence due to a fear of being labeled as uncaring.

It’s a slippery slope in my opinion because we have seen services and quality slip in the past, I just hope we aren’t used to make up budget shortfalls. Medicaid expansion in every other stage has cost more than predicted. I just want my DS to continue receiving services. [/quote]

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