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Reply to "Dealing with a scary illness at a young age"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous]I had the same thing happen, but at about 12 years old. You posted a different thread about this recently, yes? As I said then, my valve has been replaced twice (in my 40s now), and I have a totally normal life, other than yearly cardiac checkups. Most people who develop this, even young, have very few problems. If it is weighing this much on your mind -- and I say this gently -- you should sit down with your cardiologist and discuss prognosis, and maybe consider therapy. It is never completely going to go away, and there is absolutely no reason it should dominate your life. Heart stuff is hard, though. Believe, me, I get it. [/quote] [b]What is your prognosis?[/b] I am so terrified and keep getting panic attacks[/quote] Again, my prognosis is a pretty much normal life. I've said this three times, and I'm smiling when I say it this time. I expect to live as long as my parents, into my 80s or 90s. I did ballet at university, go hiking in the mountains, and have no problems with my early morning jogs. I have sex about 4-5 times a week and in adventurous positions. :D I do have yearly cardiac visits. Not every other year in my case, because I progressed quicker than most. Honestly -- stop posting on DCUM. It's working you up even more each time. Talk to your cardiologist. Believe them, or get a second opinion (which will almost certainly be the same, so you can believe both of them). Last time I linked you the prognosis for this diagnosis from the American Heart Association. Like I said, it's a pretty normal life. That isn't going to change because of your feelings about it. Your feelings need to be addressed as their own issue. And consider therapy. That's not dismissive. It's a kind voice from an older gal who been there, done that. [/quote]
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