Reply to Gluten-free/dairy-free - how strict do you have to be?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]I think very few people see any real improvement in neurological conditions with elimination of dairy and/or gluten.    The people that did see real improvement are very evangelical about it, which I assume is because it made a huge difference in their life.

In my personal view, these conditions are largely diagnosed by symptoms, not by causation or even underlying neurological physiological markers.  So my guess is that there are actually multiple conditions being called the same thing, or  multiple causes for the same condition.  For some small percentage of people, it may be food sensitivities.  
Sort of like how 100 years ago there was just "cancer" -- now we know that cancer can be caused by environmental toxins or by genes, and that different types of cancer grow in different ways and respond to different treatments.

I think the only way to do it is the really hard way --- the old school total elimination test.  Eliminate both for at least 3 days.  (Some people say that you have to wait months to see a difference....I just don't know.)  Add back in one.  Etc.[/quote]

There is simply no scientific proof it works to "cure" autism. But you are right, some people are very evangelical about it.

https://spectrumnews.org/opinion/reviews/going-gluten-free-unlikely-to-help-most-people-with-autism/

https://www.autismspeaks.org/science/science-news/study-glutencasein-free-diet-doesn%E2%80%99t-improve-autism-symptoms[/quote]

OP here - should have been clear that I am absolutely not expecting a special diet to "cure" my son's autism.  He has ASD, period, and always will.  But I am hoping it will be help lessen some of his behavioral symptoms, and will help eliminate or reduce his ezcema and GI issues.  Diet definitely impacts how I feel, and when I feel like crap I am moody and have low energy.  I don't know why a child couldn't have a similar reaction if he doesn't feel well.[/quote]

It's a daunting task, though, to do strictly. No parties, meals out, travel is difficult as you have to bring foods with you, etc.

I wish I could find the blog where a doctor wrote about doing it strictly with his family for months and months, and they thought it was making such a difference, and then they went on a trip and they forget the food and just use regular foods and ... no difference. At all. [/quote]

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