Reply to Positive for trisomy 21 results on NIPT

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Reply to "Positive for trisomy 21 results on NIPT"

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[quote=Anonymous]I am so sorry, OP. My wife found out in early 2015 that our baby also tested positive for T21, but she was nearly 17 weeks along at that point.

Here was our sequence of events...We have one living child who was around 20 months at the time we found out. Both children were IVF pregnancies, and very wanted. DW was 32 at the time, and our chances of T21 were 1/414. There was only one thing that was slightly alarming at her NT scan around 12 weeks, and after thinking on it for a few weeks, she insisted on a free cell DNA test. We even agreed to pay OOP because since she wasn't advanced maternal age, insurance would not cover it. We found out when she was around 16 weeks that the test was positive for T21. We had talked about what we would do if this happened, but you never truly know until it happens. She had an amnio the same day, and the FSH results were in two days later, also confirming T21. We spent the weekend researching all of our options - termination, adoption, or keeping the baby.

In the end, and for a myriad of reasons that were very personal to us, DW decided to terminate. We were able to work with a therapist immediately afterwards (her name escapes me - those days were a huge, dark fog) but eventually had to stop after a few visits because our insurance didn't cover it. We found a support group for women who TFMR, attended once. During and immediately following the termination, our genetic counselor was also a valuable resource for me in terms of offering her support. There was a social worker at the hospital (WHC) who was incredibly kind to us, and even reached out months later to see how we were doing. The doctor who performed the procedure was also very caring.

This was, by far, the darkest period of our life. I am still in counseling, as I'm fairly certain I set aside my emotions to be there for DW, and then felt the effects of the loss many months later. We have come out on the other side, and following two miscarriages after this loss, DW is now almost 12 weeks. We have also cleared the free cell DNA test. Which is not to say that we aren't still scared - we are. But we cannot live in fear every day.

My advice is this: communicate with each other, do the research, talk to people who are informed, and then make the decision that is best for your family. No one gets to say what the decision is except for you and your husband. And know that whatever you decide, there is support out there. [/quote]

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