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[quote=Anonymous][quote=Anonymous]I feel you. I have a child w severe Pandas and other issues. Getting ivs are so much easier than going to the dentist, thats how bad it is. He has this irrational extreme fear of the dentist coming at him toward his mouth.

We have tried many area dentists.

Greenwald's practice (her partner, Dr. Charlie) using the papoose method.

Dr. Perez, known as the ``cartoon dentist'', maybe be willing to prescribe a valium before the appointment.

Dr. Ensor in Rockville may be able to schedule your child when nobody else is in the room.

We got our last appointment done with Dr. Rubin in Tenleytown.

Keep in mind that some people believe that a dental cleaning causes Pandas flares.

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OP here. Thank you so much. I will try these providers. Yes, we also see flares with dental cleanings, and I think the cavity itself is causing some flares. We've never seen flares associated with cleaning but when DS had a major cavity previously, that itself seemed to be related to a massive flare - it's a form of strep (strep mutans) that is often at work in the mouth, and another doctor told us that mycoplasma was sometimes involved - that's a major trigger for us, so we do see flares. But what can you do? If you come back to this thread, could you provide a little bit more about what each dentist does? Could you provide a little bit more about what each dentist does and how your child responded to it?

To other posters, we use (and LOVE) Dr. Kuwabara as our main dentist. Unfortunately, he's not equipped to help my son, whose phobia and fear is way past "gentle natured" coaxing. It was okay when my son was smaller but now that he's bigger and needs some real work done, it's just not happening. So we saw Dr. Abel for the extractions we needed, and loved him too, in case that ever helps anyone. But now i basically need a sedation dentist for a child. And one with experience with extreme sensory issues would help.

To the PP who mentioned OT, no, he is not. However, we are investigating this for him. It's been a tough track because his flares were truly episodic, and the sensory related stuff was too. But now that seems to be lingering and as those with PANDAS always worry, it's hard to tell if this is an underlying thing or if the behaviors he starts to experience / display during a flare is causing him to rewire with new behavior patterns - either way the net result is that we are clearly dealing with unusually high sensory stuff. That's definitely something we're looking into, and i'd welcome any side note advice there, but the dental thing is really critical and has to happen now, since he has an active cavity and i should mention, some pain, and we need to get it taken care of.

Thanks again for your responses.

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