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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Wow, I am impressed! No seizures. I guess I am worried she will Google SWS and see the brain involvement cases and wonder about my dd. You have to admit, when you Google, you see the worst/scariest cases. My dd has been super fortunate.

I sent the teacher an email about her port-wine stain to make it clear we are comfortable/want it to be something that is normalized. She was like--Loh, not worried about that.". Hence my confusion and worry. [/quote]

Don't be impressed  :) I have SWS.  If it were my DD, I would mention the symptoms and not give the teacher anything to google.  Most people never heard of SWS... and symptoms can vary widely.

I never had seizures and attended elite private schools so people don't think I have cognitive issues unless they think all lawyers do;)

My birthmark was lasered off years ago and my glaucoma is under control:  I have 20/20 vision with contacts.

FYI, I never considered having SWS as having special needs at least for me.

If you have considered getting the port wine stain treated, I would do it sooner than later.

Best wishes to the little one![/quote]

I would totally give you a hug if I could PP!  My husband and I are geeky PhDs and we love her pws actually and she is having laser treatments (it is much lighter now), but we want her to have a rich intellectual life and would be proud even if she were a lawyer. :P   Seriously, thank you!  SWS is so rare and I get excited to know of a person with SWS who says something like "I never considered having SWS as having special needs at least for me."  I hope my dd grows up with the same attitude!  [/quote]

You are welcome!  My SWS was always a bigger deal for my parents than me.  Like many parents they wanted to know "why their child" and how they can make everything better for me.  They were always over protective which is understandable but exasperating for me nevertheless.

I did have many laser treatments and many eye surgeries including a shunt implanted into one of my eyes to control the glaucoma but the SWS did not affect me at school.  More importantly socially, I look normal once the birthmark was treated.  No one can tell I "have" anything.  I am married to another Ivy educated lawyer and have a kid.  So I wouldn't let the stories on the internet about SWS scare you.  Your DD can have a perfectly normal life.[/quote]

This is vomitous.[/quote]

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