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Reply to "Genetic Testing- do it or not do it?"
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[quote=Anonymous]Parent of a child with an extremely rare disorder here. I think you should do it. Knowledge is power. I needed to know why and am glad I could stop searching for a cause, in our case it was unclear if my child had a degenerative disease so finding out relieved us of that worry. Also, if you do find something, and with testing becoming more sophisticated everyday you might find something and then have the significance be unclear. If you find out something is genetic in origin, you do not need to and probably should not disclose it to your educational team. This is what we have been advised by several people including our geneticist. Visit the website Complex Child and look under the genetic/rare diseases tab. There are some essays that discuss whether to test or not. [/quote]
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