Reply to Infants and Toddlers pushing kids out of program

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[quote=Anonymous]My DS was referred, evaluated and accepted into the Montgomery County Infants and Toddlers Program (MCITP) back when he turned 18 months old.  During their 2 part evaluation they identified that he was over 24% delayed in every area with the exception of gross motor development.  They also flagged him as being high risk for Autism but said they cannot give formal diagnosis.  We then went to a private provider and got an diagnostic eval done (ADOS) and he received a ADS DX at 19 months old along with a recommendation for ABA therapy of 20 hours a week.  We then took this Dx to MCITP during the Family Service Planning (FSP) meeting and requested that they added the recommended therapy to this FSP.  They said they they use an outside provider for ABA (CSAAC) and submitted the request which was approved for 10 hours.  Evidently 10 hours is the max the MCITP covers through CSAAC they explained.  They also provided weekly SPIN (Special Educator) to come to the house to do parent and child sessions one hour a week.  His primary deficit was expressive and receptive language but they did not provide a speech therapist because they said DS was too young and they usually start that at 2 so we went to a private provider for speech and occupation therapy.  DS is now 23 months old and has made significant progress and now has over 200 words and is manding (requesting) constantly which was his main ABA goal and MCITP is now not agreeing with the ASD diagnosis.  They are saying that he has already mastered all of the FSP goals that were set and is now showing development higher than his chronological age and feel that the program is not longer appropriate fit for him.  They want to get their own developmental/educational psychologist to evaluate him and determine if the Autism Diagnosis is in fact accurate.  Their initial plan and discussions with me were that he would transition out of MCITP into the Montgomery County PEP programs or the CAPP (Pre-K for Autism) but now they are saying that they dont feel these programs will be a good fit for my DC and that my child not does not require that type of support.  I have the feeling they are trying to push my DC out because they do not want to cover the funding for CSAAC and other supports for kids with Autism hence they want to get their own people in to remove the Autism diagnosis that we received privately.  It's funny that before they did not diagnose Autism  but now they have people that can all of a sudden do that.  My husband and I fully agree with the Autism diagnosis and understand that it is a spectrum and some kids are very high functioning but still need supports in place even though some skills can be ahead of NT kids.  Can we deny their evaluation and still with our own private DX to continue them to fund ABA through CSAAC? [/quote]

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