Reply to Tell me about aging out of the dev delay code

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Reply to "Tell me about aging out of the dev delay code"

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[quote=Anonymous][quote=Anonymous]This is OP.  Thanks for the replies so far.  Did anyone have to fight the system to get or reject a particular code?  I've heard that the code doesn't affect the services.  So then why do we need to change the code anyway (beyond the legal requirement)?  And if ID/MR is on the table doesn't that affect SSDI or other funding?[/quote]

Don't fight about the code, fight for what[i] services/supports[/i] your kid needs.

You don't have to change the code until they age out, but my guess is that they will pressure you too.  To be honest, if your kid has multiple diagnoses like mine affecting speech, motor, and academics, they will probably want to give you the autism label.  My kid isn't actually on the spectrum, but I'm just looking for a meaningful IEP.

The IEP code isn't a medical diagnosis.  The handful of codes were devised 40 years ago by well intentioned legislators.  Not perfect, but it is what it is.   It's better than what existed b/f the passage of IDEA and FAPE b/c there was ZERO/ZIP/NADA.
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