Reply to PANDAS

Forum Index » Kids With Special Needs and Disabilities

Reply to "PANDAS"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]We've been dealing with this for a few years now and have been to Dr. Latimer, as well as other PANDAS specialists across the country.  Cefdinar and Azithromycin aren't going to cut it- your DC needs Augmentin.  Our protocol is 500MG 3x/day for the three days any time DC has a flare, and 2x a day thereafter.

Instead of Advil, try tumeric supplements (tumeric is a natural anti-inflammatory that is safer than Advil) and NAC 2x a day.  The NAC is a miracle supplement, more and more studies are coming out on how impactful it can be on conditions such as this.  DC also takes probiotics- Florastor and RenewLife Ultimate Flora 100 billion every day, as well as 5000 mg of Vit. D.  The probiotics and Vit. D are to ensure his immune system is strong and our current doctor thinks they're every bit as important as the Augmentin.

Kids who are susceptible to PANDAS are also more likely to be intolerant to gluten, casein/dairy, and folic acid (you can read more about the MTHFR mutation).  We've found that eliminating these from DC's diet has reduced his flares.

Dr. Latimer is great- definitely the best PANDAS specialist in the area.  However, she sticks to the antibiotic, IVIG protocol for the most part.  We did two rounds of IVIG at an enormous out-of-pocket cost (and a lot of discomfort for DC- both treatment were followed by two days of headaches and constant vomiting) and I honestly believe the tumeric & NAC combo works just as well.  Our son is doing much better, but it took a combination of approaches from different doctors and nutritionists to get where we are today.

[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics