Environmental and Genetic

Anonymous
Anonymous wrote:
Anonymous wrote:So PP, then why are you alternative folks so fast to dismiss the mainstream treatments? I am frankly tired of reading about people bashing and blaming vaccines and toxins for ALL of autism. It's nonsense. It's not true. I have relatives who are the living proof that it wasn't vaccines that caused autism. I have relatives who grew up in a much less toxic environment than my kids do and yet they are autistic.

You don't know PPs child, PP did not say "very autistic", but she said her child is still autistic. I have a friend with a very autistic child who tried every alternative approach out there. Guess what, the child is still non-verbal. So how can you say that YOU know the cure and that the ONLY way is the alternative way? It doesn't work for EVERY child on the spectrum, when are you going to accept that?

I have yet to see anyone of you alternative treatment people acknowledge mainstream therapy.


What exactly do you mean by mainstream therapy? If you mean drugging my kid, then you are right, I will never acknowledge that as a viable therapy. I am a huge believer in non-pharmaceutical treatments, but that doesn't mean that my child has never been to ST or OT. And, I did not say that others should not use traditional therapies. I have always said that they can be done in tandem. It doesn't have to be one or the other. What is annoying is when the older crowd refuses to acknowledge that a child can be cured of autism, when I have seen it with my very own eyes, several times over. And what is also annoying is that I have also seen kids damaged by vaccines (a vaccine reaction so strong that the child stopped speaking the very day of his 18 month vaccines)....granted not everyone's autism is caused this way, but that doesn't mean that it can't happen this way.

There are many roads of possibilities and causes out there. There is room here for everyone to have a point of view.


NP here. I. Am. Sick. Of. This. Attitude. I was not aware that mainstream therapy for autism included what you refer to as "drugging". I always thought mainstream meant intensive ABA and other interventions added as necessary (ST, OT, PT, Floortime, etc.). If GFCF works for your child? Fine. If dietary supplements show improvement? Go for it. If you want to put them through procedures to try to 'detox' because you are seeing a direct tie to this and improvements with your child? Fine. (Although there IS research out there to support that some of those procedures truly are dangerous). My autistic daughter is not taking medication. She's been in an ABA-VB program since she was 2 1/2 years old, and in OT/ST since she was younger than that. It works. Period. How is this mainstream approach bad? Am I not a good parent because I do not try alternative therapies? She has a high level of anxiety that has a tendency to interfere with her ability to learn. I may medicate her for that in the future. In your mind, would I be evil for "drugging her"? I have another child who is not on the spectrum, but he does take medication every day. For allergies. And for ADHD. Am I a bad parent for that too? How about letting each parent evaluate what is best for his/her child based on input from medical professionals, behavioral professionals, and research and then not criticizing as long as the child is not being harmed and the family sees success with the treatment? Why do people assume that medication is harmful by default? I am sick of the judgments. I don't judge or speak negatively about the parents who post on this board suggesting alternative therapies. It might work and who am I to second guess that? I do get angry and offended when those who support an approach that is different from my chosen approach post insulting and degrading comments.
Anonymous
Anonymous wrote:
Anonymous wrote:

What exactly do you mean by mainstream therapy? If you mean drugging my kid, then you are right, I will never acknowledge that as a viable therapy. I am a huge believer in non-pharmaceutical treatments, but that doesn't mean that my child has never been to ST or OT. And, I did not say that others should not use traditional therapies. I have always said that they can be done in tandem. It doesn't have to be one or the other. What is annoying is when the older crowd refuses to acknowledge that a child can be cured of autism, when I have seen it with my very own eyes, several times over. And what is also annoying is that I have also seen kids damaged by vaccines (a vaccine reaction so strong that the child stopped speaking the very day of his 18 month vaccines)....granted not everyone's autism is caused this way, but that doesn't mean that it can't happen this way.

There are many roads of possibilities and causes out there. There is room here for everyone to have a point of view.


NP here. I. Am. Sick. Of. This. Attitude. I was not aware that mainstream therapy for autism included what you refer to as "drugging". I always thought mainstream meant intensive ABA and other interventions added as necessary (ST, OT, PT, Floortime, etc.). If GFCF works for your child? Fine. If dietary supplements show improvement? Go for it. If you want to put them through procedures to try to 'detox' because you are seeing a direct tie to this and improvements with your child? Fine. (Although there IS research out there to support that some of those procedures truly are dangerous). My autistic daughter is not taking medication. She's been in an ABA-VB program since she was 2 1/2 years old, and in OT/ST since she was younger than that. It works. Period. How is this mainstream approach bad? Am I not a good parent because I do not try alternative therapies? She has a high level of anxiety that has a tendency to interfere with her ability to learn. I may medicate her for that in the future. In your mind, would I be evil for "drugging her"? I have another child who is not on the spectrum, but he does take medication every day. For allergies. And for ADHD. Am I a bad parent for that too? How about letting each parent evaluate what is best for his/her child based on input from medical professionals, behavioral professionals, and research and then not criticizing as long as the child is not being harmed and the family sees success with the treatment? Why do people assume that medication is harmful by default? I am sick of the judgments. I don't judge or speak negatively about the parents who post on this board suggesting alternative therapies. It might work and who am I to second guess that? I do get angry and offended when those who support an approach that is different from my chosen approach post insulting and degrading comments.



Wow, there are a lot of accusations in there that do NOT match up with what I wrote, and what you quoted. Did you not read my entire post or did you stop reading after the word "drugging"? Where did I say "bad parent"? That is YOUR perception, not mine. If the word "drug" bothers you, get over it...pharmaceutical medications are drugs. You are playing victim to the wrong crowd....there is no insult in my post.

Go look back at old threads....every time an alternative medicine/therapy is brought up "science shill" chimes in and calls us unscientific idiots and says "don't listen to them, they're crazy".....we're the ones who are friggen attacked every time we mention an alternative to the mainstream.
Anonymous
Anonymous wrote:Wow, there are a lot of accusations in there that do NOT match up with what I wrote, and what you quoted. Did you not read my entire post or did you stop reading after the word "drugging"? Where did I say "bad parent"? That is YOUR perception, not mine. If the word "drug" bothers you, get over it...pharmaceutical medications are drugs. You are playing victim to the wrong crowd....there is no insult in my post.

Go look back at old threads....every time an alternative medicine/therapy is brought up "science shill" chimes in and calls us unscientific idiots and says "don't listen to them, they're crazy".....we're the ones who are friggen attacked every time we mention an alternative to the mainstream.


Another NP who likes 10:53's post.

I think posts like yours are the ones the PP is referring to that turn people off. Perhaps you don't realize how you come across but I can tell you that no matter your actual words, I took your post the same way the PP did. Starting out by refusing to "drug" your child sure does set the tone and it colors every single word after that. It doesn't take long for people to recognize your writing style and carry those unpleasant thoughts with them when they read your posts. It doesn't matter what your POV is, you could be the biggest, loudest stronges proponent of medication out there but your tone would still turn me off. And don't be disingenuous by saying medication is a drug. We all know what you meant.

I'm fine with people posting about alternative approaches to treatment, we do some of them ourselves and many current mainstream treatments started out as alternative. We need to keep an open mind and do our own research. But when you post over and over again being so ugly, it does nothing to help you make your point. You become the thread bully.
Anonymous
This is such a hard road as it is. I think we need to support each other, and not bash each other. I guess you'd call me hippy-dippy. We do a ton of alternative modalities and they have worked for my son. I believe that this is something that he can heal from as autism is another man-made disease. I have a cousin with two kids with issues, but that's becoming commonplace. I do think there might be a genetic predisposition, but I do believe that the environment and vaccinations have a ton to do with it.

We have done I guess what you consider mainstream therapy and that has also worked in the past. We no longer do and he is continuing to thrive. I think as parents we need to be open to everything, as long as it's safe. I don't want to change my child, I want him to be healthy. Why are all these children suffering from digestive problems - crohn's/colitis, etc.? I have a TON of health problems. Our generation is sick, period, and our children are sicker.

Bottomline is that I want all kids with special needs to prosper and thrive and there are many ways to go about it. I know that some children really progress with mainstream therapy and that's wonderful. I know some children progress with alternative therapy and that's great too. We all love our children and want what is best for them.

By no means am I trying to be rude. I hope you all don't take it that way. I just think this can all be so isolating and I have always enjoyed this message board for how respectful it is. Maybe we need to respectfully all disagree? Again, we all have the best interests of our children at heart, and I hope that they continue to thrive.



Anonymous

I have friends using DAN doctors.....their children aren't cured of anything. They have made improvements....just as many children do as they mature. I have other friends who were told their children were "on the spectrum" by EI....and they did nothing but speech therapy and OT. Now these children are fine, and you'd never know they had an issue. It's pretty clear to the parents they never had autism to begin with.

I agree with those saying there's a lot of different conditions being pushed under the autism spectrum label now. That's why everyone has such different experiences with it...the progress, what seems to work, etc.

And there are a whole lot of people Dxing autism or ASDs who lack the skill and the training to accurately do so, and it's creating a huge problem...as well as openings for fraudulent snail oil treatments.




XTroll
Member Offline
Anonymous wrote:
Anonymous wrote:Wow, there are a lot of accusations in there that do NOT match up with what I wrote, and what you quoted. Did you not read my entire post or did you stop reading after the word "drugging"? Where did I say "bad parent"? That is YOUR perception, not mine. If the word "drug" bothers you, get over it...pharmaceutical medications are drugs. You are playing victim to the wrong crowd....there is no insult in my post.

Go look back at old threads....every time an alternative medicine/therapy is brought up "science shill" chimes in and calls us unscientific idiots and says "don't listen to them, they're crazy".....we're the ones who are friggen attacked every time we mention an alternative to the mainstream.


Another NP who likes 10:53's post.

I think posts like yours are the ones the PP is referring to that turn people off. Perhaps you don't realize how you come across but I can tell you that no matter your actual words, I took your post the same way the PP did. Starting out by refusing to "drug" your child sure does set the tone and it colors every single word after that. It doesn't take long for people to recognize your writing style and carry those unpleasant thoughts with them when they read your posts. It doesn't matter what your POV is, you could be the biggest, loudest stronges proponent of medication out there but your tone would still turn me off. And don't be disingenuous by saying medication is a drug. We all know what you meant.

I'm fine with people posting about alternative approaches to treatment, we do some of them ourselves and many current mainstream treatments started out as alternative. We need to keep an open mind and do our own research. But when you post over and over again being so ugly, it does nothing to help you make your point. You become the thread bully.


I'm amazed at how thin-skinned any of you are. I don't pout every time I'm called a troll or called crazy for believing the things that I do. I'm not sitting around here calling anyone a "dumbass" either. But when you start calling me names and insulting my beliefs, you better believe that my ego will respond in turn with the same intensity. I don't care if you are turned on by my posts or not. My intent here is to be honest, and if you take offense to what I say or how I say something, that is your problem, not mine. Perhaps "you" and "I" have reached a stalemate, but there are other people reading who may resonate with what I write. It is for their benefit that I post the things that I do.....I could care less about our approval. There are other posters here defending alternative medicine here too...not just me.
Anonymous
Anonymous wrote:
I have friends using DAN doctors.....their children aren't cured of anything. They have made improvements....just as many children do as they mature. I have other friends who were told their children were "on the spectrum" by EI....and they did nothing but speech therapy and OT. Now these children are fine, and you'd never know they had an issue. It's pretty clear to the parents they never had autism to begin with.

I agree with those saying there's a lot of different conditions being pushed under the autism spectrum label now. That's why everyone has such different experiences with it...the progress, what seems to work, etc.

And there are a whole lot of people Dxing autism or ASDs who lack the skill and the training to accurately do so, and it's creating a huge problem...as well as openings for fraudulent snail oil treatments.






I agree with that 100%.
XTroll
Member Offline
I wouldn't call going to a DAN! doctor that alternative though. They are western medicine's attempt at curing autism as they take a western medical approach by using pharmaceuticals like steroids, antifungals, antibiotics, MB12, antivirals, etc. What makes them different from your way of thinking is that they view autism as a physiological condition that in essence affects the neurological state.

Of the 2 friends who have cured their children's autism, one of which was medically diagnosed with Mitochondrial disease, neither of them cured their children with DAN! doctors, but not for lack of trying. Both had begun their healing journeys with a DAN! doctor, but bombed horribly.

In the end, it was the use of homeopathy, natural/holistic supplementation, and allergy elimination protocols such as NAET that brought them to cure. That is how they did it. Neither friend spent a penny of their money on behavioral therapies. Their children are completely integrated in elementary school now with zero assistance and they have lost their ASD labels by second grade. So you might say to me "well, they were never autistic to begin with"....but how do you know that? And how many OTHER children have the same thing as my friends' children that can be cured, but are possibly being mislabled? There is no way to know....and I guess if you don't try, you'll never know if your child could have been cured or not.

Anonymous
XTroll wrote:I wouldn't call going to a DAN! doctor that alternative though. They are western medicine's attempt at curing autism as they take a western medical approach by using pharmaceuticals like steroids, antifungals, antibiotics, MB12, antivirals, etc. What makes them different from your way of thinking is that they view autism as a physiological condition that in essence affects the neurological state.

Of the 2 friends who have cured their children's autism, one of which was medically diagnosed with Mitochondrial disease, neither of them cured their children with DAN! doctors, but not for lack of trying. Both had begun their healing journeys with a DAN! doctor, but bombed horribly.

In the end, it was the use of homeopathy, natural/holistic supplementation, and allergy elimination protocols such as NAET that brought them to cure. That is how they did it. Neither friend spent a penny of their money on behavioral therapies. Their children are completely integrated in elementary school now with zero assistance and they have lost their ASD labels by second grade. So you might say to me "well, they were never autistic to begin with"....but how do you know that? And how many OTHER children have the same thing as my friends' children that can be cured, but are possibly being mislabled? There is no way to know....and I guess if you don't try, you'll never know if your child could have been cured or not.



I know many people whose children's autism dx just went away as they matured. They had soft signs of autism coupled with a language delay. Some were told to pick out institutions for their kids, some were told they were mentally retarded and severely autistic. Time was their cure.
XTroll
Member Offline
Then how do you account for all the adult autistics that you claim exist in the same proportions?
Anonymous
XTroll wrote:Then how do you account for all the adult autistics that you claim exist in the same proportions?


The CDC numbers for children are typically pegged to 8 year old children. Lots of kids I know don't get any services by the time they are 8. Instead, the were "identified" at crazy early ages of 18 months, launching their families into a world of worry and decisions about which treatments to take part in.

The CDC phone survey they did of parents was quite telling....40 percent of the parents there said they had been told their child was autistic, but that they were no longer.





Anonymous
I'm amazed at how thin-skinned any of you are. I don't pout every time I'm called a troll or called crazy for believing the things that I do. I'm not sitting around here calling anyone a "dumbass" either. But when you start calling me names and insulting my beliefs, you better believe that my ego will respond in turn with the same intensity. I don't care if you are turned on by my posts or not. My intent here is to be honest, and if you take offense to what I say or how I say something, that is your problem, not mine. Perhaps "you" and "I" have reached a stalemate, but there are other people reading who may resonate with what I write. It is for their benefit that I post the things that I do.....I could care less about our approval. There are other posters here defending alternative medicine here too...not just me.


Guess what? That makes YOU thin-skinned - besides being a nut case. Only in your reality would a DAN doctor not be considered alternative.
Anonymous
Anonymous wrote:
I'm amazed at how thin-skinned any of you are. I don't pout every time I'm called a troll or called crazy for believing the things that I do. I'm not sitting around here calling anyone a "dumbass" either. But when you start calling me names and insulting my beliefs, you better believe that my ego will respond in turn with the same intensity. I don't care if you are turned on by my posts or not. My intent here is to be honest, and if you take offense to what I say or how I say something, that is your problem, not mine. Perhaps "you" and "I" have reached a stalemate, but there are other people reading who may resonate with what I write. It is for their benefit that I post the things that I do.....I could care less about our approval. There are other posters here defending alternative medicine here too...not just me.


Guess what? That makes YOU thin-skinned - besides being a nut case. Only in your reality would a DAN doctor not be considered alternative.


You are missing the point. The PP I was responding to was trying to gain pitty points by saying that she had enough and wasn't going to respond to anymore posts because there were too many other people posting their opinions that differed from hers. That is why I said she was pouting. I'm not afraid to stand up for my point of view when challenged.
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