Anonymous wrote:
I have a severely speech delayed child with MERLD, and in my long experience (child is now 11), speech therapy can be a waste of time IF the therapist isn't doing a child-led therapy and focusing on your child's individual needs. Too often they are doing a one-size fits all therapy, and not really looking at a child's underlying issues, hence the lack of progress. Is your child's issues truly motor based, or something else, like receptive language? That makes a difference.
We were in Florida when my son was 2, and his therapy, paid for by the state, was twice a week in a therapist's private office. It was great, as he went from a handful of words to almost 100 in a year. He easily picked up nouns. Then we moved, and he started getting therapy through the school system, and we found very, very little progress there. It WAS a waste of time and a "sham" if you will. Unfortunately, it seems like many school based programs and EI are this way indeed.
So we went private, my son was (wrongly) was diagnosed with apraxia, and the (very nice) therapist started these sessions where she basically chased my child around and tried to get him to do what she wanted. She was not very successful. This went on for a year, before we decided to make the trip to Nashville and see Dr. Stephen Camarata. And boy was that eye-opening! And absolutely life-changing.
Dr. Camarata immediately told us our child's receptive language was so low, he had no idea what we were saying. We were way overtalking him. (The right utterance level is one word plus their current level of speech. If they are saying car, you say "Red car?") His wife Mary sent us home with a detailed plan of how to increase our child's language (we also got a normalization rate, which seems about right on target).
AND they watched a tape of our current speech therapy sessions, and told us it was a total waste of time. Mary Camarata also told us how to fix it. Luckily for us, the therapist listened to her advice, and the therapy sessions changed overnight. It was amazing to me that she had a masters and yet was still not trained in child-led speech therapy. Even the therapist was surprised at the change and the level of work she was able to get out of him when she met him as his level. We did continue a few years more, but stopped when my son hit about 2nd grade. He was exhausted after school and wasn't progressing with her anymore. We now focus on academics instead of speech, because his speech is coming in naturally.
OP, take a look at Dr. James McDonald Communicating Partners website and Hanen's "It Takes to to Talk." The truth is , parents are often the child's best therapists. You spend the most time with them!
Agree. Also in our case, my child did not like the approach of the majority of speech therapists. Most are very loud, talkative, and bubbly. All of that extroverted energy makes my DD shut down. Too many of them pegged her intellectually disability to be moderate when it is fairly mild and my daughter was annoyed. I tried to gently sway them to change their approach. Finally, I pulled her out of ST until I found a low key guy who usually worked with adults. He figured out quickly what her intellect level was because he didn’t just launch into one approach. He tried modulating his voice until he found the tone she would respond to. She ended up crushing on him at 6 y/o because I think she felt like he really “saw” to her for who she is. He is so much easier for me to to work with too. She has made good progress over the past two years with him. So it can also be personalities.
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