Looking for Referral for Development Pediatrician -- Outside of Childrens

[Anonymous]

Hello,

I'm looking for another dev ped recommendation outside of childrens who was completely unhelpful because my daughter is smart. They literally said, "maybe she'll need some attention meds once she's in school." Come back in a year.

I'm looking for someone who can do a thorough evaluation and tell us if/what there is something we should be doing for her besides weekly OT and social group

Thanks

[Anonymous]

Have you considered Kennedy Krieger in Baltimore? I haven't personally used them, but have heard great things.

[Anonymous]

Second the suggestion for Kennedy-Krieger.

[Anonymous]

dr. kozma at georgetown
or penny glass

[Anonymous]

Anonymous wrote:Have you considered Kennedy Krieger in Baltimore? I haven't personally used them, but have heard great things.

Get on their waiting list now b/c I've heard it take many months to actually be seen there.

[Anonymous]

No no no, not Dr. Kozma at georgetown. She is a geneticist and if you are looking at a genetic syndrome, fine. But she completely missed the boat on my son's autistic spectrum disorder because she only really knows genetic syndromes. She shouldn't call herself a developmental pediatrician.

[Anonymous]

I wish you could get in to see Dr. Dan Shapiro, he's fantastic. But his practice is closed.

[Anonymous]

I say NO NO NO Penny Glass!! Dr Kozma saw my son's autism when he was only 13 months old, confirmed it at 2. Dr Glass said my son isn't getting enough social stimulation and I don;t know how to discipline him...

[Anonymous]

would you mind saying who the doc is that you are not happy with at CNMC? we see one and i am not pleased either.

dr. chuck conlon is great and has a private practice (i believe in marylnd). we were fortunate to see him when he was still with CNMC, but now can't afford to go outside our insurance.

[Anonymous]

Anonymous wrote:I say NO NO NO Penny Glass!! Dr Kozma saw my son's autism when he was only 13 months old, confirmed it at 2. Dr Glass said my son isn't getting enough social stimulation and I don;t know how to discipline him...

Also didn't hae a great experience with Penny Glass. Didn't think she was horrible, just not helpful (and not friendly to boot).

[Anonymous]

PP you quoted here. No she was not horrible at all, and in fact, some of her advice was warranted. But she failed to address the underlying issues of why my son was not able to function. She simplified it as if she was a mother analyzing her daughter's abilities to raise her child. We saw 3 psychologists since her and all of them have confirmed that my child is on the spectrum. He has been attending an autism program since August, and you would not believe how much he has changed!! Both his private Speech Therapist and Occupational Therapist who have been seeing him since June of 07 are absolutely stunned.

My gut told me that he was autistic since he was 4 months old. And I felt crazy, when talking to the pediatrician and Dr. Glass. Now I am the one saying: "I told you so." I dedicated the past 2 1/2 years to research the best methods to give my son a fighting chance for anormal life, and a year ago I thought he had no shot at it at all. Now he is thriving and amazing us all, because the extremely structured classroom setting helps him tremendously. Both his teacher and I work closely together to reinforce even the teeniest new skill he picks up.

Whenever you suspect your child may need extra help it becomes an agonizing journey in this labyrinth of specialists. But in the end, you just have to compare their notes to your own and try to educate yourself.

Good luck!

[Anonymous]

Can I ask what kind of autism program your son is in? Are there specific high functioning or Aspergers programs available? None of the special schools I have heard about mention this -- I have heard of Maddux and Diener.

[Anonymous]

A third or so NO TO PENNY GLASS. She tells all parents pretty much the same thing--no matter how different your kid is. I would get on Dr. Conlon's list ASAP. It's long, and he's expensive, but your child is priceless (and EI is essential!)

[Anonymous]

Just one more weigh-in on Penny Glass: she's very responsive to questions over email, which we like, but in general, we find her much less aggressive about seeking therapy than virtually any other expert that we've spoken to. For us, she suggested basic strategies like reducing distraction, etc, rather than pursuing autism therapies like Floortime or speech and OT, even when a developmental pediatrician we consulted suggested that the delays we were seeing were substantial and worthy of early intervention. That same pediatrician mentioned that she had seen another patient of Penny Glass who had also presented with substantial delays that Dr. Glass did not feel were worthy of intervention yet. Perhaps she just has a different approach to when intervention is helpful...

[Anonymous]

Try Dr. Pam Comparte in Columbia, MD