Medical update for donor

[Anonymous]

Anonymous wrote:

Anonymous wrote:Does this information arise when a half sibling grows up and presents with the disease?

The donor self reported to the bank and they notified anyone which purchased vials.

I don’t believe this in one hundred years! How would you verify that? You are taking the for profit company’s word ?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Does this information arise when a half sibling grows up and presents with the disease?

The donor self reported to the bank and they notified anyone which purchased vials.

I don’t believe this in one hundred years! How would you verify that? You are taking the for profit company’s word ?

What incentive would they have to tell people their donor has cancer if it’s not true?

[Anonymous]

You missed the point. A sibling parent reported it. Not the donor, suddenly. Think about what us more likely —and who is more likely to report.

Some give samples for the money. They are not tying themselves to an organization

[Anonymous]

Anonymous wrote:You missed the point. A sibling parent reported it. Not the donor, suddenly. Think about what us more likely —and who is more likely to report.

Some give samples for the money. They are not tying themselves to an organization

All of the donor subs are too young and all connected already. The donor was recently diagnosed and gave proof of date.

I'm sure a lot wouldn't report

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:1/3 of people get cancer eventually. There is nothing you can do at this point. Every donor, and you yourself, have something imperfect in their genes. And if you had ruled out this donor you wouldn't have your wonderful baby. I hope your PPD/ppa treatment is successful.

Thank you. We feel the same way. We wouldn't change anything at all. It does feel like we can't use the remaining two embryos knowing this so that is something we will have to discuss and sit with

This conclusion does not follow at all, in my mind. Did you think you were getting flawless human germ cells with this sperm donor? Something will go wrong with absolutely everyone.

No not at all. It's more the knowing beforehand. And the wording on the email from Fairfax. They are advising a return of any leftover vials for a refund and placed the profile as restricted. It feels overwhelming. I know things will pop up even on my side. I don't know my family history all that well and I'm still fairly young and certain diseases haven't had time to pop up.

But you also have to factor in the fact that you are depriving your existing child and (potentially) your hypothetical other offspring of a full genetic sibling—which could have its own implications for their health.

Talk to a medical ethicist about this; don’t just take the sperm bank’s liability-minded advice.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:1/3 of people get cancer eventually. There is nothing you can do at this point. Every donor, and you yourself, have something imperfect in their genes. And if you had ruled out this donor you wouldn't have your wonderful baby. I hope your PPD/ppa treatment is successful.

Thank you. We feel the same way. We wouldn't change anything at all. It does feel like we can't use the remaining two embryos knowing this so that is something we will have to discuss and sit with

This conclusion does not follow at all, in my mind. Did you think you were getting flawless human germ cells with this sperm donor? Something will go wrong with absolutely everyone.

No not at all. It's more the knowing beforehand. And the wording on the email from Fairfax. They are advising a return of any leftover vials for a refund and placed the profile as restricted. It feels overwhelming. I know things will pop up even on my side. I don't know my family history all that well and I'm still fairly young and certain diseases haven't had time to pop up.

But you also have to factor in the fact that you are depriving your existing child and (potentially) your hypothetical other offspring of a full genetic sibling—which could have its own implications for their health.

Talk to a medical ethicist about this; don’t just take the sperm bank’s liability-minded advice.

Will definitely chat with a geneticist and take in all considerations. TBH I don't think I can go through another cycle. We would just not grow our family. As is, we are unsure about the other two embryos and transfer and we were already waiting for baby to turn 1 to start talking or thinking about it.

[Anonymous]

Anonymous wrote:You missed the point. A sibling parent reported it. Not the donor, suddenly. Think about what us more likely —and who is more likely to report.

Some give samples for the money. They are not tying themselves to an organization

This makes no sense. No way to prove just because one sibling has HL that it came from th donor. It's not genetic and could very well have come from their mother or other factors. What is more likely is the donor was diagnosed much later in life than when he donated and did the right thing by self reporting

[Anonymous]

Anonymous wrote:

Anonymous wrote:1/3 of people get cancer eventually. There is nothing you can do at this point. Every donor, and you yourself, have something imperfect in their genes. And if you had ruled out this donor you wouldn't have your wonderful baby. I hope your PPD/ppa treatment is successful.

Thank you. We feel the same way. We wouldn't change anything at all. It does feel like we can't use the remaining two embryos knowing this so that is something we will have to discuss and sit with

My friend whose husband had a bone marrow transplant for something like this (not sure now whether it was lymphoma or leukemia) went ahead with having kids with his banked vials and IUI. Everybody is doing well right now. Dad in 50s and seems permanently cured. Kids are college age and healthy.