PARTICIPANTS NEEDED for Study on Dementia, Emotions & Close Relationships

[gucareslab]

PARTICIPANTS NEEDED: Caregivers & Loved Ones Wanted for In-Person Study on Dementia, Emotions & Close Relationships (Washington, D.C.) – Earn up to $250! (18+, all genders)

Hello! We are the Clinical Aging and Relational Emotion Sciences (CARES) Lab at Georgetown University. We are currently recruiting caregivers and their loved ones diagnosed with dementia (or other neurodegenerative conditions) to participate in a research study regarding emotions, well-being, and close relationships in our Caregiver and Patient Study (CAPS).

What's involved?
- Come to Georgetown University for one in-person lab session (~4-5 hours), where you and your partner will complete a survey, cognitive assessment, and lab-based tasks.
- As part of the study, non-invasive physical measurements will be recorded from both participants, such as heart rate and rhythm, breathing patterns, and eye movement.
- Bring the individual you provide care for: your spouse, significant other, family member, or anyone you’ve had a close relationship with that may have dementia, mild cognitive impairment, or a neurodegenerative disease.
- Financial compensation: Up to $125 each ($250 total).

Who can participate?
- Caregivers must be 18+ years old.
- You must be a caregiver for and have a close relationship with an individual with dementia, mild cognitive impairment, or a neurodegenerative disease.

How to get involved?
- Dates and times for participating are flexible. To get started, please complete this brief eligibility survey and we will get back to you via email: https://georgetown.az1.qualtrics.com/jfe/form/SV_6WHdx33VanF79wG
- Please feel free to reach us with any questions or concerns you may have. Your participation is valuable and helps us better understand the caregiving experience!

Contact information:
Email: [e-mail]
Phone number: 202-687-9214

For more information about our lab and research, visit: https://sites.google.com/georgetown.edu/cares-lab

Thank you for helping us advance this research!

[Anonymous]

That's not a lot of money when you take into consideration breaking up the routine of person with dementia, getting that person ready and driving to Georgetown. I would suggest you consider having a mobile medical van and driving to the person's home, and still paying the same amount (to make it worth the disruption). You don't want to add to the caregiver's stress with your study.

[Anonymous]

Anonymous wrote: That's not a lot of money when you take into consideration breaking up the routine of person with dementia, getting that person ready and driving to Georgetown. I would suggest you consider having a mobile medical van and driving to the person's home, and still paying the same amount (to make it worth the disruption). You don't want to add to the caregiver's stress with your study.

Oddly, I find it offensive that a study such as this would use the term "up to" when referencing the payment.

[Anonymous]

This seems so silly. what is this, a phishing scam?

[Anonymous]

Anonymous wrote: That's not a lot of money when you take into consideration breaking up the routine of person with dementia, getting that person ready and driving to Georgetown. I would suggest you consider having a mobile medical van and driving to the person's home, and still paying the same amount (to make it worth the disruption). You don't want to add to the caregiver's stress with your study.

This part 1 million percent. Insulting to caregivers and the patient.
--Daughter of caregiver and of a person with dementia

[Anonymous]

Also, you expect them to come for 4-5 hours for what amounts to below minimum wage when you take into consideration preparation and travel time and then you don't provide any meals? Of course providing meals is a whole other issue because some seniors need pureed foods. Plus, that amount of time and then adding travel will be exhausting for the senior and together with the change in routine could set off terrible behavior.

Go to their home over multiple days for much shorter periods of time and work around the routine of the senior. Some need naps.

[Anonymous]

Anonymous wrote:

Anonymous wrote: That's not a lot of money when you take into consideration breaking up the routine of person with dementia, getting that person ready and driving to Georgetown. I would suggest you consider having a mobile medical van and driving to the person's home, and still paying the same amount (to make it worth the disruption). You don't want to add to the caregiver's stress with your study.

Oddly, I find it offensive that a study such as this would use the term "up to" when referencing the payment.

I do too. It's a small amount of money for that amount of inconvenience and stress and it's being dangled like a carrot. You are creating an even more stressful situation for a likely burned out caregiver and I get the sense the people who came up for this have no idea what it's like day in and day our for these caregivers.

[Anonymous]

Clinical evaluators - You have gotten very honest input to consider in trying to set up a more reliable screening session with validity.
Also to expect any adult in either category to
have the stamina and focus for more than two hours at a time is valid.

I have seen a lot of studies looking for parents and adults with Down syndrome posted on reliable web sites and some do initial or followup screenings in-person or using Zoom
At times some inventories are done ahead of time. You might consider and prioritize what issues are most likely to skew the results negatively before you even start.

I would start with the option of having cake oarki g for participants

[Anonymous]

Oops vale parking for participants and go from there!