Any other parents of babies hospitalized for RSV?

[Anonymous]

My DS was hospitalized for RSV for a week (including a short stay in the PICU). He's 2 now and probably on his way to an asthma diagnosis (recurrent wheeze/shortness of breath with almost every cold).

I'm mostly just looking for some support/sympathize/anecdotes about how your child, if something similar happened to them, turned out. I'm really hoping that even if my son has asthma, that it's something he can grow out of, despite the severe infection he had as a baby.

[Anonymous]

My oldest was hospitalized for RSV as an infant, and she had recurrent croup and seemed constantly sick from daycare. My youngest has something called DCD (and low tone) and would end up in the ER with almost every cold until recently (he is almost 5). Not just croup and wheezing but also stridor that would have to be managed by nebulizer and steroids. We were told that they couldn't dx asthma until 5 or later. Everyone is doing fine now!

[Anonymous]

Anonymous wrote:My oldest was hospitalized for RSV as an infant, and she had recurrent croup and seemed constantly sick from daycare. My youngest has something called DCD (and low tone) and would end up in the ER with almost every cold until recently (he is almost 5). Not just croup and wheezing but also stridor that would have to be managed by nebulizer and steroids. We were told that they couldn't dx asthma until 5 or later. Everyone is doing fine now!

So your oldest doesn't have asthma now? That's great!

[Anonymous]

25 year old daughter hospitalized with RSV before she turned 2, no asthma ever. She does seem to get Covid a lot, but I attribute that to her being social.

[Anonymous]

So your oldest doesn't have asthma now? That's great!

Correct!

[Anonymous]

My ds is 16 now. He was hospitalized with RSV at 4 weeks. From k-4th grade every cold caused a lingering cough that was hard to convince the school that he was ok to be in class. It seemed like every winter we would have weeks of getting calls from the nurse asking us to pick him up. Then a day home from school to get cleared from the doctor then back to school. Only to start all over again the next day. We finally had to have the doctor write a letter to the school nurse.

Around 5th grade this started to fade out. He was in 6th when covid started and did 7th at home. 8th grade he was masked and did not get sick. For the last 2 years he has ho no chest cold issues at all!!!

[Anonymous]

My oldest was a preemie and had terrible lungs. He was hospitalized many times age 5 and under. RSV and croup were the usual causes. He doesn’t have traditional asthma. He has been diagnosed with cough variant asthma when he has a viral URI. It hasn’t been a big deal. I worried a lot. But it is ok.

[Anonymous]

My now 6 year old who was hospitalized with severe RSV at 2.5 has no lingering effects.

Ironically his older brother who never had a severe RSV case now has asthma.

[Anonymous]

Op here - thanks for the responses! I feel somewhat reassured. This whole process has filled me with a lot of worry and stress, though I know this is a highly treatable condition.

[Anonymous]

Son was admitted for RSV at 5 months, stayed 3 nights. He is now 9. Other than breaking his foot at preschool, he hasn’t had a sick day from daycare/school since (and no asthma!) It will be ok! Hugs!

[Anonymous]

My niece was hospitalized for rsv as an infant ten years ago. Thankfully she’s totally fine now!

[Anonymous]

DS was in the PICU with RSV as an infant. It was terrifying.

Now in preschool he does sometimes get very sick from colds and needs a nebulizer. We were told they don't test for or call or asthma yet, but "reactive airways" at this age. I think it's getting a little better and less frequent, fingers crossed.

OP to the extent you are blaming yourself (because of course we all do even when it makes no sense!) even if he gets asthma, it doesn't necessarily mean the RSV caused it. We were told they're not sure which way the causation goes. Some predisposition could have caused the RSV hospitalization and eventually asthma diagnosis.

On another note my other DD had some serious issues as a young infant and completely outgrew them. It's very hard to predict.

[Anonymous]

DS had recurring croup from 11-20 months. Every month was croup and stridor we ended up in ER or urgent care almost every month.

He is totally fine no breathing issues at all. He is 6

DD was admitted to the hospital when she was 29 days old and was there for 5 days, for RSV. That was the only breathing issue she had ever had. She is 4 now. We are in the office more for her antics than anything else.

[Anonymous]

yes!
ds (now 8) was hospitalized for a week at 6 weeks old. it was awful and scary. The doctors at weill cornell and our ped both concurred that this would portend more infections and greater likelihood of pneumonia for 3 ish years following but then ideally he would grow out of it. That did turn out to be true (he was hospitalized following it several times for respiratory stuff until 4). The last time he had something happen was during covid age 4 when it just hit (we live in nyc) and he woke me up in the middle of the night and said 'I can't breathe'. that was fun. but it was just croup.
he has had croup one more time aged 7 since then but lasted like 3h. so yes he did grow out of the repercussions.

[Anonymous]

My daughter was in the PICU with rsv at age three weeks. Like others have said, it was terrifying. She is 12 and has no respiratory issues at all, and a normal immune system.