Anyone else with Ehlers-Danlos who can recommend a personal trainer???

[Anonymous]

I'd like someone who is familiar with this syndrome who can help me get into shape. Thanks!

[Anonymous]

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[Anonymous]

I just also found out I have this and am doing PT next month. If I find out anything of interest I'll post here. Trainer out of my budget but am hopeful the PT can give me advice about how to work out myself without doing further damage.

If you are interested in a chiropractor my dr. did recommend one who is familiar with this syndrome. I have not been and probably also out of my budget but may look into it.

[Anonymous]

What is this syndrome
I've been I'll too and posted earlier looking for a of. Thanks
I

[Anonymous]

OP here. 22:47, I have been through PT but was unhappy with the therapist. I have learned what exercises help reduce the pain but I would like to "look" better, more fit and toned.

I would love to hear if you like your therapist, if they understood the syndrome and if they have any thoughts on training.

Also, who diagnosed your condition? Was it an internist/general practitioner or a specialist?

Thanks! You're the first other person I've heard that also has this.

[Anonymous]

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