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Reply to "Anyone here have super high TSH (Thyroid) - over 100?"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]If only it was that simple, I was diagnosed 14 years ago and they have never been able to get it within normal range. Endocrinologist had me at 725mcg daily and it would not come down. Tsh 563.. imagine the hell i was living. Come to find out my body was not absorbing it. I tried chewing it, letting it desolve under my tongue, you name it I tried it. Now I take[u][b] 200mcg IM injection daily[/b][/u], that means i take 4 shots daily. Not to mention that I have a hard time getting the supply that I need from the pharmacy and a few thousand dollars a month. Current tsh over 100 and been taking the shots for over 8 months. I have to laugh when people complain that their tsh is at 100 or below. I live with sever body pains daily and would give anything to have a normal level. Signed miserable in Nebraska[/quote] WOW!! I'm so sorry you have to endure that... I can't even imagine mine being that high. I know how horrible it is to be out of range (below 100)... I don't know if this will help but I'm sure you feel as desperate as I was... have you ever considered a GI problem being the cause of not absorbing the medicine properly? I had a hard time absorbing meds and was wondering why my levels weren't lowering despite the constant increases to my dose. Turns out, I had celiacs and because of the damage to the villi in my intestine I wasn't absorbing all the nutrients I was putting into my body, including my thyroid meds. I'm not saying that solved all my issues, but it helped. Worth looking into because hypothyroidism and Celiac's Disease definitely have a connection. Also, have you tried t3? Liothyroinine gave me back my life. -Just some suggestions from someone who's been there. Hope your feeling better![/quote] I have had the testing and scopes done, it is not celiac Disease. TSH is currently at 84 since starting Injections. Update, I started Tirosint 200 MCG daily and my THS is down to 128. and maintaining. Still very miserable, but it is better than 563. Would recommend this drug to anyone not having luck with any other thyroid meds. Thanks Miserable in Nebraska[/quote]
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