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Expectant and Postpartum Moms
Reply to "Anyone pregnant with anti-phospholipid syndrome (blood clotting disorder)? "
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Be oh so grateful you have a diagnosis. I've lost 6 babies ans almost my uterus before they found the rare clotting disorder. I'm attempting my last pregnancy on tons of drugs including lovonox.[/quote] Coming back to say - lovonox may not be enough. In addition to my clotting disorder I also have abnormal immune activity. The problem is there are very few OBs or RIs that are trained to treat immune causes of miscarriage. If you get to miscarriage 2 or 3 it's time to reach out to a reproductive immunologist. There are only 5 in the US.[/quote] May I ask what your diagnoses are? Mine is Sjogren's, with suspected clotting disorder. Apparently no Plaquenil is needed, but heparin might be, as well as fetal monitoring.[/quote] I'm on lovonox, prednisone, plaquenil, tacrolimus, metformin, and a bunch other supplements. I have weekly monitoring and bloodwork to make sure my immune levels don't rise. It's an extremely intensive monitoring program.[/quote] Woah. That's not the medical standard of care for a clotting disorder and suspected auto-immune involvement but in the absence of an auto-immune diagnosis. Who prescribed all of this? The medications you list are heavy-duty ones, and I've never heard of a clotting disorder being treated with multiple anticoagulants in this way, plus tacrolimus, plaquenil and prednisone. I would caution you to beware of a doctor who would give you all of these things. I'm very sorry for your multiple losses, and I understand you really want to carry a pregnancy to term! But... please be careful. You don't want to suffer from cumulative side-effects of ALL these meds. I remember you posted multiple times before. There is a reason why most doctors didn't want to prescribe all these things. It may not be what your body needs, and it's a treatment strategy that comes with heightened risk, to you. [/quote]
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